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GUIDE TO STIFF-PERSON SYNDROME

February 28

Sam Baar stiff-person syndrome gait

Sam Baar tremors and spasms

Sam Baar full body spasms part 1

Sam Baar full body spasms part 2

Sam Baar full body spasms part 3

Sam Baar stiffness and rigidity

Sam Baar climbing stairs part 1

Sam Baar climbing stairs part 2

Sam Baar climbing stairs part 3

Sam Baar climbing stairs part 4

Sam Baar climbing stairs part 5

Sam Baar IVIG infusion part 1

Sam Baar IVIG infusion part 2

Sam Baar IVIG infusion part 3

Sam Baar IVIG infusion part 4

Sam Baar IVIG infusion part 5

Sam Baar IVIG infusion part 6

Sam Baar full body paralysis part 1

Sam Baar full body paralysis part 2

Sam Baar slow speech but without tremors

Sam Baar rides a Permobil M300 with Tilt and Recline

Sam Baar attack at hotel prior to stem cell therapy

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Lindsay Whittington wishing the pain would stop Part 1

Lindsay Whittington Part 2

Lindsay Whittington Part 3

Lindsay Whittington Part 4

Lindsay Whittington Part 5

Lindsay Whittington Part 7

Lindsay Whittington Part A

Lindsay Whittington Part B

Lindsay Whittington Part C

Lindsay Whittington Part D

Lindsay Whittington Part E

Lindsay Whittington Part F

Lindsay Whittington Part G

Lindsay Whittington Part H

Lindsay Whittington IVIG

Linsday Whittington HSCT Campaign

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Stiff-person syndrome PERM variant Pt 1

Stiff-person syndrome PERM variant Pt 2

Stiff-person syndrome PERM variant Pt 3

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David Napier video list

Alma Villareal stiff person attack part 1

Alma Villareal stiff person attack part 2

Laura Kassem battles rare 'Stiff Person Syndrome’

Jillian Jordan’s story

Deborah Richardson’s story

Dan Williams, my “conscious” seizures









Chris Geilman - stiff-man syndrome news report

Fabiola Flores stiff-person syndrome examination

Carl Ericson: What in the world is stiff person syndrome?

“Jerky” stiff-person syndrome / myoclonus

Kayla Pound’s story

Stiff-person syndrome: stiffness and rigidity

M.E., dystonia, stiff-person syndome and clonazepam

Beth Berry’s stiff-person story

Wendy Dalton, stiff-person spasms

What is Stiff Person Syndrome Dr. Karen Frei

A Laredoan's struggle with stiff-person syndrome

Tanya Montague stiff-person leg spasm

Valerie Wright stiff-person syndrome

Scott Judkins stiff-person spasms

William Duemler symptoms

Golnaz Aboutorabian The Journey of Pain movie

Two Women with Stiff Person Syndrome Treated with Stem Cell Therapy

Stiff Person Syndrome & Mitochondrial Disease Includes Myoclonus

Alma Villareal Stiff Person Syndrome Episode 20140419

SPS recurrent hypertonic spasms

SPS Attack


The following are links to patient stories and blogs about living with stiff-person syndrome.

1.  Lindsay Whittington

http://nerriberri.wordpress.com/2014/03/27/suffering-in-silence-one-in-a-million-x/

2. David Napier

http://www.smssupportgroup.co.uk/PDFs/Personal_Accounts/David %20Napier's%20Story.pdf

3. Golnaz Aboutorabian

http://www.smssupportgroup.co.uk/PDFs/Personal_Accounts/My% 20SPS%20Story%20Golnaz%20Aboutorabian.pdf

4. Donna Deegan

www.amazon.com/Broken-Body-Healed-Spirit-acceptance/dp/1494715430

https://www.facebook.com/livingforwardsps

5. Ingrid Steppan



Special thanks to all of the brave patients who have chosen to publicly share their experiences so that others can better understand the disease.

VIDEOS & PATIENT STORIES